Innovation Links and Resources

This page has links to resources that will interest people involved in innovation.

Research

Moving Toward Citizenship: A Study of Individualized Funding in Ontario (132KB pdf) John Lord, 2006
Futures for Young Adults Program Evaluation (939KB pdf) Published by the Victorian Government Department of Human Services, Melbourne, Victoria, May, 2002
The Robert Wood Johnson Foundation Self-Determination Initiative: Final Impact Assessment Report (656KB pdf) November 2001
Sustaining Services and Supports for Individuals with Disabilities and Their Families (262KB pdf) Shairose Jinnah, 2006; Masters thesis from Royal Roads University which explored the question of how services and supports provided by the Community Living Restructuring Fund could be sustained

Community Development

The Role of Community Development: Implications for CLBC (95KB pdf) John Lord and Brian Salisbury, 2006
Readings About Community (65KB pdf) John Lord
Social Co-ops and Social Care: An Emerging Role for Civil Society
(135KB pdf)
John Restakis
Mapping the Assets of Your Community: A Key Component for Building Local Capacity (511KB pdf) Lionel J. Beaulieu, Southern Rural Development Centre
Community Builders.nsw An Australian website with numerous articles and materials on community development
Identifying Community Assets and Resources A website operated by the Community Tool Box that promotes community health and development by connecting people, ideas and resources
Community Youth Mapping Centre for Youth Development and Policy Research
Institute for Community Inclusion A University of Massachusetts website with a number of publications related to inclusion, as well as planning
Asset Based Community Development Website for John McKnight and John Kretzmann
Best Practices in Canada on Community Economic Development

Safeguards

Reflecting on Social Roles Identifying Opportunities to Support Personal Freedom & Social Integration (785KB pdf) John O’Brien, June, 2006
Advocacy In Response To The Conceivable Predatory Uses Of People In The Service User Role (44KB pdf) Michael Kendrick, December, 2005
The Limits And Vulnerabilities Of Individualized Support Arrangements: Some Dimensions Of Quality That Must Be Monitored Carefully In Individualized Options (61KB pdf) Michael Kendrick, 2001
The Quality Of Personal Presence: The Alternative To Simply “Being There
(35KB pdf)
Michael Kendrick, May, 2006
Overview of Key Safeguarding Issues(40KB pdf) Overheads used by Michael Kendrick at at CLBC’s March 1, 2006 pre conference workshop on safeguards
Self Direction In Services and the Emerging Safeguarding and Advocacy Challenges That May Arise (84KB pdf) A Discussion Paper For An Exploratory Study Session June 9, 2005, Hartford, CT., Hosted By The Connecticut Office Of Protection And Advocacy, Michael Kendrick
Balancing Safety and Freedom in Consumer Directed Systems of Support (109KB pdf) Charles Moseley, Ed.D., June, 2001
Intentional Safeguards For Older People (62KB pdf) A presentation by Michael Kendrick for the New Zealand Council Of Christian Social Services Conference On “Values: Cost Or Investment”, Wellington, New Zealand, March 18-22, 2002
Some Brief Comments on Safeguards Enablement By Formal Organizations(40KB pdf) Michael Kendrick, February,  2006
The Role of Informal Community-Level Safeguards
(350KB pdf)
Paper that discussed the role of informal, community-level safeguards, their relationship to formal safeguarding mechanisms and policy and strategic planning implications for the future role of Community Living British Columbia; prepared for the Board of Directors of the Interim Authority for Community Living British Columbia, Brian Salisbury and Dan Collins, April 19, 2004
A Literature Review on the Benefits, Challenges and Trends in Accreditation as a Quality Assurance System (238KB pdf) Marcos Cerqueira, MPA Graduate and Co-op student, Ministry of Children and Family Development
Analysis of the First 100 Accredited Agencies’ Survey Report (98KB pdf) Ministry of Children and Family Development, Final Report, March 2006

Individualized Funding

Brief International Research Summary – Individualized Funding: Cost and Resource Issues (36KB pdf) Tim Stainton,  PhD, University of British Columbia, February, 2006
Individualised Funding in Disability Services(139KB pdf) Carmel Laragy, Department of Human Services, Victoria, Australia
Annotated Review of Selected Consumer Directed Support Studies(35KB pdf) Brian Salisbury, Interim Authority for Community Living British Columbia, September, 2003
Individualised Support and Funding: building blocks for capacity building and inclusion (118KB pdf) John Lord and Peggy Hutchison, Disability & Society, Vol. 18, No. 1, 2003, pp. 71–86
Seattle Declaration on Individualized Funding (142KB pdf) Developed at the First International conference on Self-Determination and Individualized Funding, Seattle, July 2000
Individualized Funding: Emerging Policy Issues (218KB pdf) Prepared for the Roeher Institute by Steve Dowson and Brian Salisbury, December 1999
Individualized Funding Information Resources Dedicated to providing comprehensive information about
the development of ways that people with disabilities can gain control over the funds to pay for needed community services and supports – a crucial step towards self-determination and citizenship
Individualized Funding Coalition for Ontario

Working to make IF a reality for Ontario
Seattle 2000 Declaration on Self-Determination & Individualized Funding This site supports the goals, policies and principles enshrined in the Declaration of the First International Conference on Self-Determination and Individualized Funding held in Seattle, Washington, July 29 – 31, 2000

Empowerment

Some Initial Thoughts On Establishing “Right Relationship” Between Staff, Professionals, Service Organizations and the People They Assist (53KB pdf) Michael Kendrick, 2000
Discerning Actual levels Of Substantive Empowerment (34KB pdf) Michael Kendrick, February, 2004
When People Matter More Than Systems (88KB pdf) Keynote Presentation for the Conference “The Promise Of Opportunity”, Michael Kendrick Albany, New York, March 27-28, 2000
Investing In Strategies That Give Life (97KB pdf) A Keynote Presentation by Michael Kendrick for the Community Resource Unit Conference, Brisbane, Queensland, Australia, April 10-12, 2003
The Potential Role Of Advocacy In “Imagining Better” (35KB pdf) Michael Kendrick, July, 2002
Community and Rights (56KB pdf) A Keynote Presentation given by Michael Kendrick at the “Rights and Responsibilities”, 7th Annual Conference of the National Advocacy Council, Brothers Of Charity, November 8, 2005, Salthill, Galway, Ireland
Advocacy in Practice: The Troubled Position of Advocates in Adult Services (95KB pdf) Liz Forbat and Dorothy Atkinson, British Journal of Social Work, vol. 35, 2005 pp 321-335
The Circumscribed-Sometimes Advocacy of the Case Manager and the Care Provider (863KB pdf) Rosalie A. Kane, Generations, 2004

Person-Centred Planning

The Potential Role Of Questionable Assumptions In Personal Planning Processes (51KB pdf) Michael Kendrick, 2004
Some Predictable Cautions Concerning The Overemphasis and Over-Reliance On Person-Centred Planning (46KB pdf) Michael Kendrick, 2004
Consumer-Directed Person-Centred Planning Person-Directed Planning….As a Tool to Assist People in Making Life Changes Debra McLean, Oregon Health Sciences University, Center on Self-Determination
Consumer-Directed Person-Centred Planning (107KB pdf) Sherrie Anderson, Dianne Duerscheidt, and Debra McLean, Oregon Health Sciences University, Center on Self-Determination
Person-Centred Planning or Person Centred Action? Policy and Practice in Intellectual Disability Services (98KB pdf) Jim Mansell and Julie Beadle-Brown, 2003
Training Person-Centred Planning Facilitators – A Compendium of Ideas (2MB pdf) Angela Novak Amado and Marijo McBride, Institute on Community Integration, University of Minnesota
After The Plan Michael Smull
Person-Centred Planning and Perversion Prevention Michael Smull and Susan Burke Harrison
Getting from Where I Am to Where I Want to Be! Bill Allen and John Shea, Adapted from Personal Futures Planning for Project TRANSITION, the School-to-Work Interagency Transition Partnership for Napa County, California
Getting to Know You: Planning for Services in Supported Living (348KB pdf) Compiled for Connections for Information and Resources on Community Living, Claudia Bolton and Bill Allen
More Than a Meeting: A Pocket Guide to the Person-Centred Individual Program Plan Prepared by the California Department of Developmental Services by Bill Allen and John Shea for the California Department of Developmental Services, Sacramento, CA, July 1994
Thoughts about My Life (806KB pdf) Bill Allan and John Shea
Parardigm A website in the United Kingdom with links to many articles on-line including many related to person centred planning
ELP Learning Community Articles and information on Essential Lifestyles Planning and the work of Michael Smull
Publications by John and Connie Lyle O’Brien Link to an extensive list of articles
Quality Mall Information on person-centred services supporting people with developmental disabilities. This site is also a resource to links to lots of information on person-centred planning materials

Family Governed Projects

Personal Lifestyle Assistance Project: Thinking Beyond Tradition (103KB pdf) Deb Rouget, January, 2006
A Brief Overview of the Personal Lifestyle Assistance Project (70KB pdf)
Family Managed Supports (53KB pdf) Alberta Persons with Developmental Disabilities – Community Inclusion Supports Framework, Updated March 27, 2006
Family-Managed Supports Project Report (69KB pdf) Alberta Persons with Developmental Disabilities, March 22, 2006
Top 10 Things You Need to Know…PDD’s New Policy on Family-Managed Supports (75KB pdf) Alberta Persons with Developmental Disabilities, March 22, 2006
One By One (56KB pdf) Introducing a disability support arrangement creating lifestyle choices in the community, Victoria, Australia, 2005
Overview of One By One (40KB pdf) A small Melbourne based arrangement which is governed by the people who use it to assist them to move towards a lifestyle that is personally relevant and fulfilling in the community
Example of an governance agreement used by One By One with an service provider (202KB pdf) Please read the cover note that goes with this file
Family Governed Flexible Family Support: The Massachusetts Small Project Example (80KB pdf) A paper sponsored by the Massachusetts Families Organizing for Change and Uniting Families for Change Of Western Massachusetts, Michael Kendrick, January , 2001

General Interest

Christmas in Purgatory: A Retrospective Look (94KB pdf) Steven J. Taylor, April, 2006
Enhancing Community Capacity to Respond to Crisis Among People with Disabilities and their Carers (238KB pdf) A Workshop Collaborative between the Interim Authority and the South Fraser Community Workshop Final Report, Nancy Hall, May 3, 2004
Centre on Human Policy Located at Syracuse University, the CHP site contains a wide range of articles on different topics relevant to the field of developmental disability
Culturally Sensitive Family Support Services: The Massachusetts Example (37KB pdf) Michael Kendrick, 2002
Parent and Sibling Perspectives on the Transition to Adulthood (100KB pdf) Cynthia R. Chambers, Carolyn Hughes, and Erik W. Carter,Vanderbilt University, Education and Training in Developmental Disabilities, 2004, 39[2], 79–94 © Division on Developmental Disabilities

Leadership

The Leadership Challenge of Service Quality (89KB pdf) Michael J. Kendrick, 1997
Personal leadership and Its Contribution To Service To Others (49KB pdf) Michael Kendrick, Proceedings: Sharing The Road Conference, 2001, Brisbane, Australia
Public and Personal Leadership Challenges (63KB pdf) Michael Kendrick, 1994, “Personal and Public Leadership Challenges,” in V.J. Bradley, J.W. Ashbaugh and B.C. Blaney (Eds) Creating Individual Supports for People with Developmental Disabilities, Paul H. Brookes Publishing Company
The Ways That People Can Make a Difference (235KB pdf) Michael Kendrick, 2002
The Leadership Challenges In Ireland In Regards To Altering The Conditions Of Life For People With Disabilities
(40KB pdf)
Michael Kendrick, 2005
Leadership, Alliances and Change
(36KB pdf)
A Keynote Presentation by Michael Kendrick for A Conference On Alliances, Leadership And Change, Trinity College, Dublin, Ireland, November 25-26, 2005; Hosted By The National Institute For Study On Learning Difficulties, Trinity College, Dublin, Ireland
The Many Ways That Service Users And Families Can Help Improve The Workforce (48KB pdf) Michael Kendrick, October 2005
Everyone is a Leader (23KB pdf) Susan Powell, PHD, and Brian Salisbury, November 2006

Systems

Exploring Whether There Is An Optimal Relationship Between Public Bureaucracies And Communities
(63KB pdf)
Michael Kendrick, 2005
Some Examples Of Broad Strategies To Shield Consumers And Families From Invasive Bureaucracy (37KB pdf) Michael Kendrick, July 2002
When People Matter More Than Systems (88KB pdf) Keynote Presentation by Michael Kendrick for the Conference “The Promise Of Opportunity”, Albany, New York, March 27-28, 2000
Creating The Right Conditions For “Thriving”; The Place Of A Specific Ecology For Personalized Initiatives For “Small” People (36KB pdf) Michael Kendrick, August 2004
Securing Self-Determination: Building the Agenda in Canada (82KB pdf) Michael Bach, 1998
Key Components of Systems Change (230KB pdf) First of three papers on unlocking the code of effective systems change; Michael J. Kendrick, Darrell L. Jones, Lee Bezanson and Richard E. Petty, January 2006
Hallmarks and Features of High–Quality Community-Based Services (176KB pdf) Second of three papers on unlocking the code of effective systems change; prepared by Michael J. Kendrick, Lee Bezanson, Richard E. Petty and Darrell L. Jones, January 2006
Promoting Self-Direction and Consumer Control in Home-and Community-Based Service Systems (203KB pdf) Third of three papers on unlocking the code of effective systems change; prepared by Michael J. Kendrick, .
Richard E. Petty, Lee Bezanson and Darrell L. Jones, January 2006

Policy Issues

Coming of Age: Securing Positive Futures for Seniors with Intellectual Disabilities – Outcomes of the Coming of Age Dialogue held in Winnipeg, Manitoba, April 29 – May 1, 2004 (469KB pdf) Final Report, Roeher Institute, Written by Cameron Crawford, June 2004
Getting a Life – Findings and Recommendations from the NASDDDS Invitational Symposium: State Strategies for Supporting People with Co-Existing Conditions (216KB pdf) National Association of State Directors of Developmental Disability Services, November, 2004
Fact Sheet: AGING; Older Adults and Their Aging Caregivers (53KB pdf) American Association on Mental Retardation, Updated January, 2005
Creating an Inclusive and Accessible Canada: Developing A National Disability Agenda (33KB pdf) Canadian Association for Community Living and the Council for Canadians with Disabilities, December, 2005
Information Concerning People With Disabilities (232KB pdf) Canada Revenue Agency, 2005
Perspectives On “Most Integrated” Services for People with Developmental Disabilities (1MB pdf) John O’Brien, 2006
The Montreal Declaration on Intellectual Disabilities (1MB pdf) Adopted in Montreal, Canada, October 6, 2004
Independence, Well-Being and Choice – Our vision for the Future of Social Care for Adults in England (929KB pdf) Department of Health, United Kingdom, 2005
Independence, Well-Being and Choice (1MB pdf) Easy read summary – A booklet from the government about our ideas for better social care services for adults, Department of Health, United Kingdom, 2005

Innovation

Organisational And Systems Investments That Stimulate Beneficial (40KB pdf) Michael Kendrick, October, 2002
An Extract Concerning A Strategy of Systematic Provincial Investments in Innovation (29KB pdf) From an evaluation of the Nova Scotia Government’s Residential Services Community Based Options System by Michael  Kendrick, December 2000
How to — and How Not to — Evaluate Innovation This paper discusses the nature of innovation, identifies limitations of traditional evaluation approaches, and proposes an alternative model of evaluation consistent with the nature of innovation.

Relationships

More Than Inclusion: Honouring the Contributions of People with Developmental Disabilities (1MB pdf) L’Arche Canada, February 2005
Reflections on Friendship David and Faye Wetherow

Challenging Behaviour

Elimination of Restraints Through Positive Practices Developed by the Pennsylvania Office of Mental Retardation, this bulletin provides helpful information regarding restraints and a sensible protocol for their elimination
Behavior Support Guidelines For Support Workers Paid With Developmental Services Funds (371KB pdf) State of Vermont Department of Aging and Independent Living, Division of Developmental Services, October 2004

Inclusive Education

Everyone Belongs in Our Schools: A Parent’s Handbook on Inclusive Education (1MB pdf) A handbook produced by BCACL for parents of children and youth with special needs that provides information about how the school system works, the roles of school personnel, the rights and responsibilities of parents, and tips on how to advocate effectively for your child’s education. It is also useful for advocates, advisors, caregivers and planners