Ten years later: Evaluating progress through the Include Me! quality of life survey

3949_CLBC_IncludeMe_Wordmark_ME_v8CLBC is using a ground-breaking project to measure the quality of life outcomes of those we serve in British Columbia. 

First launched as a demonstration project in 2010, CLBC has now worked with over 70 service providers to survey more than 3,000 individuals about how they feel about their independence, social participation and well-being.

The project is unique among social programs in its effort to ask individuals with developmental disabilities directly how they feel about their quality of life. To do this, it uses a framework that has been developed and researched by international expert Dr. Robert Schalock.

Last year, 819 individuals participated in the survey process. It was well received by individuals and well supported by service providers. About 80 per cent completed the survey on their own, and others were supported to participate by having two other people who know them well respond on their behalf. Those conducting the interviews were individuals with a developmental disability who were recruited, trained and employed by researchers.

2014/15 results

Results for last year show that scores are highest in feelings of well-being:

IncludeMeresults

 Scores are lowest in feelings of social inclusion, at 6.6/10.

This year CLBC is planning a general population survey so that it can compare individuals we serve with others in the community.

What we are learning

This is giving CLBC and its service providers very important information to help us know how to better support individuals. For example, it shows that those receiving employment services feel more positive in the areas of rights, self-determination and social inclusion.

It also shows that those in shared living arrangements have higher scores in self-determination, rights, personal development and social inclusion.

How the data is leading to better services

The data is helping CLBC and participating service providers get better at what we do. Agencies that have been part of the project have been using the results to change how they deliver services. Last year four agencies that were part of the original demonstration project participated again, and saw dramatic across-the-board improvements of 11 per cent in the scores of those who receive their services. They saw the biggest gains for those they serve in the areas of interpersonal relations, self-determination and social inclusion.


Learn more about Include Me! findings by clicking here.

Read about how this project is helping one agency better serve individuals and families by clicking here.

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