The survey consists of 53 questions in the areas of independence, social participation, and well-being based on a framework that was researched, developed, and internationally validated by Dr. Robert Schalock.
CLBC uses a survey that was developed by a national research company under contract with the Persons with Developmental Disabilities Edmonton Region Community Board. PDD Edmonton consulted Dr. Schalock throughout the 2-year development process and involved many individuals, family members, service providers, community living experts, and PDD Edmonton staff. The final version that was released in 2009 has been proven to have strong statistical reliability and validity.
48 questions are designed to look at the 8 domains of quality of life that explore an individual’s personal experience of independence, social participation, and well-being:
- emotional well-being – contentment, self-concept, lack of stress
- interpersonal relations – interactions, relationships, supports
- material well-being – financial status, employment, housing
- personal development – education, personal competence, performance
- physical well-being – health and health care, activities of daily living, leisure
- self-determination – autonomy / personal control, personal goals, choices
- social inclusion – community integration and participation, roles, supports
- rights – legal, human (respect, dignity, equality)
The survey also includes two additional questions about transportation, two about employment, and one about overall quality of life.
Occasionally, CLBC also conducts a version of include Me! quality of life survey with members of the general public in British Columbia. This information is used as a point of comparison for the data collected from individuals who received CLBC funded services. The national research firm R.A. Malatest & Associates Ltd.(Malatest), on behalf of CLBC, is currently conducting data collection with the general public in the Fall of 2019. Members of the public may be contacted by Malatest as part of this research through various means.